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International code of conduct for genomic and health-related data sharing

Regulatory and Ethics Working Group, Global Alliance for Genomics & Health and Sumio Sugano*

Author Affiliations

Department of Medical Genome Sciences, Graduate Scool of Frontier Sciences, The university of Tokyo, 4-6-1, Shirokanedai, Minato-ku, 108-8639 Tokyo, Japan

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The HUGO Journal 2014, 8:1  doi:10.1186/1877-6566-8-1

Published: 14 June 2014

First paragraph (this article has no abstract)

The sharing of scientific, genomic and health-related data for the purpose of research is of key importance in ensuring continued progress in our understanding of human health and wellbeing. New challenges raised by international, collaborative research require a principled and practical framework that brings together researchers, regulators, funders, patient groups, information technologists, and consortia to share data. Such a framework will facilitate global science and responsible research conduct.